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News
News and updates on the activities, initiatives and projects involving the Fondazione Gianni Benzi Onlus.

SAVE THE DATE: EUCROF workshop – Essentials of Paediatric Clinical Research – 12 September 2023, Rome – Italy
The European CRO Federation – EUCROF organizes the workshop “Essentials of Paediatric Clinical Research” that will take place on 12 September 2023 in Rome, Italy.

IMI2 conect4children Consortium announces the establishment of the conect4children Stichting
The conect4children (c4c) Consortium today announced the establishment of the conect4children Stichting, a Dutch non-profit organisation, aiming to sustain the work done by the public-private consortium.

Donate 5×1000 contribution to Fondazione Gianni Benzi Onlus
Donate 5×1000 contribution to Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus by entering the tax code 933 478 007 29

SAVE THE DATE – “PUGLIA AND THALASSEMIA – Consapevolezza, Conoscenza, Cura ” – Bari, 10 June 2023
Coordinamento Thalassemici Regione Puglia is organising the conference “PUGLIA AND THALASSEMIA – Consapevolezza, Conoscenza, Cura” to be held on 10 June 2023 at the Hotel Hi-Bari, Bari – Italy.

TIFLIX: a comprehensive, reliable and engaging platform on Thalassaemia and Sickle Cell Disease
The platform for healthcare professionals and patients with thalassaemia and sickle cell disease, called TIFLIX (Thalassaemia International Federation LIbrary eXtended) is now available!

New article on off label use of paediatric medicines
The article “Off-label is not always off-evidence: authorising paediatric indications for old medicines” has been just published in The Lancet – Child & Adolescent Health!

EMA Regulatory strategy to 2025: mid-term report
The European Medicines Agency has published a report focused on the mid-term achievements of its Regulatory Science Strategy to 2025.

FGB as co-editor on Frontiers in Medicine – Regulatory Science journal
Viviana Giannuzzi, head of the research department at Fondazione Gianni Benzi, contributed as co-editor to the research topic “Reviews in: Regulatory Science” on the journal Frontiers in Medicine – Regulatory Science.

International Thalassaemia Day – 2023
May 8th, 2023 is the International Thalassaemia Day. The theme of the event this year is “BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap”

The EU reform to pharmaceutical legislation for more accessible, affordable and innovative medicines
The European Commission has just adopted the proposal of the revision of the European pharmaceutical legislation.