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News and updates on the activities, initiatives and projects involving the Fondazione Gianni Benzi Onlus.

Rare disease training: 13-15 March 2024

Rare disease training: 13-15 March 2024

A 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners. The training will be held in Rome, Italy on 13-15 March 2023.

Election of the new ENCePP Steering Group

Election of the new ENCePP Steering Group

We are pleased to announce that Annalisa Landi has been just appointed as Steering Group member of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance for term 2024-2026.

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