News and updates on the activities, initiatives and projects involving the Fondazione Gianni Benzi Onlus.
SAVE THE DATE: EUCROF workshop – Essentials of Paediatric Clinical Research – 12 September 2023, Rome – Italy
The European CRO Federation – EUCROF organizes the workshop “Essentials of Paediatric Clinical Research” that will take place on 12 September 2023 in Rome, Italy.
The conect4children (c4c) Consortium today announced the establishment of the conect4children Stichting, a Dutch non-profit organisation, aiming to sustain the work done by the public-private consortium.
Donate 5×1000 contribution to Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus by entering the tax code 933 478 007 29
Coordinamento Thalassemici Regione Puglia is organising the conference “PUGLIA AND THALASSEMIA – Consapevolezza, Conoscenza, Cura” to be held on 10 June 2023 at the Hotel Hi-Bari, Bari – Italy.
The platform for healthcare professionals and patients with thalassaemia and sickle cell disease, called TIFLIX (Thalassaemia International Federation LIbrary eXtended) is now available!
The article “Off-label is not always off-evidence: authorising paediatric indications for old medicines” has been just published in The Lancet – Child & Adolescent Health!
The European Medicines Agency has published a report focused on the mid-term achievements of its Regulatory Science Strategy to 2025.
Viviana Giannuzzi, head of the research department at Fondazione Gianni Benzi, contributed as co-editor to the research topic “Reviews in: Regulatory Science” on the journal Frontiers in Medicine – Regulatory Science.
May 8th, 2023 is the International Thalassaemia Day. The theme of the event this year is “BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap”
The EU reform to pharmaceutical legislation for more accessible, affordable and innovative medicines
The European Commission has just adopted the proposal of the revision of the European pharmaceutical legislation.