fondazione per la ricerca farmacologica
gianni benzi onlus
Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus is a not-for-profit Scientific Research Organization, with the aim of continuing the work carried on by professor Gianni Benzi, who dedicated his life to promoting the transformation of the most recent biological and pharmacological discoveries into human medicines. We promote research in biological, medical and pharmaceutical areas, with particular reference to patients affected by rare diseases and other populations with specific therapeutic needs, including elderly and children.
Our work is inspired by 3 crucial values we learned from professor Gianni Benzi and we truly share:
because we work to improve the patients quality of life
which is the flame that drives us to carry on our activities, despite the difficulties
because we work to inform and raise awareness of all the interested people
Delve into some of the most important activities now running at Fondazione Gianni Benzi
How to move from a reactive to a multi-stakeholders proactive attitude
Change in Regulatory Sciences is a continuous challenging process! The challenge is to align scientific and patients’ objectives with regulatory requirements along the whole development process of health products. Moreover, all the stakeholders should be aware of the criteria by which the authorisation and access to products will be measured and decided to cover patients’ specific needs.read more
c4c (conect4children) is a 6-years EU project setting up a large collaborative paediatric network that will facilitate the development of new drugs and other therapies for the entire paediatric population in Europe. 33 academic and 10 industry partners, more than 50...read more
Keep updated on all the initiatives and events of the Gianni Benzi Onlus Foundation dedicated to the comparison of research and training topics.
Evidence supporting regulatory-decision making on orphan medicinal products authorisation in Europe: methodological uncertainties
A new article on the evidence supporting regulatory-decision making on orphan medicinal products authorisation in Europe has been published on the Orphanet Journal of Rare Disease.read more
December 1 marks the AIDS World Day, founded in 1988 to unite people worldwide in the fight against HIV, to show support for people living with HIV, and to commemorate those who have died from an AIDS-related illness. The EPIICAL project endorses this initiative, representing the largest international consortium of well-known scientists involved in the management and treatment of paediatric HIV infection.read more
The CloSed consortium met in Amsterdam for the final project meeting on 6 to 7 November 2018. The Dutch patient association involved in the project, VSOP (Vereniging Samenwerkende Ouder – en Patiëntenorganisaties), hosted this meeting at the Crowne Plaza Amsterdam – South.read more