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News and updates on the activities, initiatives and projects involving the Fondazione Gianni Benzi Onlus.

New HMA-EMA real-world data catalogues

New HMA-EMA real-world data catalogues

European Medicines Agency and the Heads of Medicines Agencies just launched two public electronic catalogues: one for real-world data (RWD) sources and another one for RWD studies

New gene therapy for SCD and Thalassaemia

New gene therapy for SCD and Thalassaemia

EMA recommended conditional approval of Casgevy, the first medicine using CRISPR/Cas9 gene-editing technology, for SCD and transfusion-dependent beta-thalassemia

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