News and updates on the activities, initiatives and projects involving the Gianni Benzi Onlus Foundation.
In the framework of the Conect4children (c4c) project, the Gianni Benzi Foundation needs to identify a list of economic operators to be invited to provide a proposal for the executive design, development and deployment of an IT platform to measure c4c performance. Deadline for application 7 March 2019.
Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus wishes you a 2019 full of scientific adventures. The future is now!
SMART Paediatric Foresight Training Course: Current status and future changes in the European paediatric biomedical research
On November 29-30, 2018 Warsaw hosted a two-day event on SMART project results and training activities, including special sessions on the ethical and regulatory aspects of the paediatric research, on clinical trials management, paediatric networks and infrastructures.
Evidence supporting regulatory-decision making on orphan medicinal products authorisation in Europe: methodological uncertainties
A new article on the evidence supporting regulatory-decision making on orphan medicinal products authorisation in Europe has been published on the Orphanet Journal of Rare Disease.
The EPTRI project has been presented at the “Partnerships in clinical trials Europe” conference in Barcelona, a big event aimed at accelerating clinical development and improving trial quality by evaluating and enhancing clinical practices and alliances.
December 1 marks the AIDS World Day, founded in 1988 to unite people worldwide in the fight against HIV, to show support for people living with HIV, and to commemorate those who have died from an AIDS-related illness. The EPIICAL project endorses this initiative, representing the largest international consortium of well-known scientists involved in the management and treatment of paediatric HIV infection.
The CloSed consortium met in Amsterdam for the final project meeting on 6 to 7 November 2018. The Dutch patient association involved in the project, VSOP (Vereniging Samenwerkende Ouder – en Patiëntenorganisaties), hosted this meeting at the Crowne Plaza Amsterdam – South.
In November and December the EPTRI project will be presented in two important events in Cyprus: the 6th International Multi-thematic Bio-Medical Congress and the 7th International Conference of the Cyprus Society of Human Genetics.
ECRIN participated in the 2018 KoNECT-MFDS International Conference in Seoul, Korea, from October 31st to November 2nd. ECRIN’s Director General, Jacques Demotes, gave a talk on “Rare diseases and paediatric clinical research networks in Europe”.
Last October 25-27, 2018 in Pavia the Gianni Benzi Foundation and the Master in Regulatory Science “Gianni Benzi” of the University of Pavia, in collaboration with Istituti Clinici Scientifici Maugeri and SIAR, organized the XI Foresight Training Course “Change in...