Promoting access to innovative medicines


The right to health must be guaranteed to all, even to patients suffering from rare diseases: nobody must be excluded from the progress of science.

A disease is defined as rare in Europe when it affects less than 1 in 2000. There are more than 6000 rare diseases and they are often chronic and life-threatening. 80% of rare diseases patients are children.

However, the research and marketing of orphan medicines are limited as, in view of considerable investments in research and development, expected revenues are very low.

In this field, we are actively involved in international and national collaborative projects aimed to enhance the scientific research on medicines and therapies for rare diseases patients.

We also manage and regularly update EuOrphan, a database collecting regulatory and scientific information on drugs for rare diseases.

Subscribe To Our Newsletter

to keep you up to date on our activities and initiatives

La tua iscrizione non può essere convalidata.
La tua iscrizione è avvenuta correttamente.

We use Brevo as our marketing platform. By clicking below to submit this form, you are aware and accept that the information you have provided will be transferred to Brevo for treatment in accordance with their terms of use
Utilizziamo Brevo come nostra piattaforma di marketing. Cliccando qui sotto per inviare questo modulo, sei consapevole e accetti che le informazioni che hai fornito verranno trasferite a Brevo per il trattamento conformemente alle loro condizioni d'uso

You have Successfully Subscribed!

Pin It on Pinterest

Share This