Let’s celebrate the World Sickle Cell Day 2023!
About 300,000 babies born with Sickle Cell Disease every year worldwide and most of them pass away before their fifth birthday in low-income countries.
Therefore, we aim to put the spotlight on Sickle Cell Disease by creating awareness of this disease and increasing the knowledge and skills that can lead to positive changes in healthcare outcomes, patients’ quality of life and disease burden.
To this end, we are working on a guidebook for patients, families and general public within the African Research and Innovative Initiative for Sickle Cell Education - ARISE project aimed at creating a multidisciplinary staff exchange programme among European and non-European countries to share and spread the best practices in Newborn Screening, diagnosis and treatment. To date, more than 37 secondees have already had the opportunity to be hosted in several institutions among the ARISE partners and learn more about Sickle Cell Disease.
In addition, creating a network has a key role in the sharing of knowledge and expertise to improve the health and wellbeing of patients. To this aim, we are actively involved in the activities of the International Hemoglobinopathy Research Network - INHERENT.
Help us to raise awareness, spread the word!