It is with great sorrow that we have learned of the passing away of Jordi Llinares Garcia, Head of Research and Innovation at European Medicines Agency.

Jordi was actively involved in the support of the rare disease community. For many years, he was facilitator and programme lead in conferences and meetings focused on orphan medicinal products and many more related topics. Jordi also supported the scientific and regulatory work of the Agency’s human medicines committee as EMA’s Scientific Lead.

Fondazione Benzi had the enormous privilege to work with Jordi during the 2nd Foresight Training Course, with a contribution on the theme of orphan drugs, and we are extremely grateful for the expertise he provided.

His legacy will live on through the people who had the honour to meet and work with Jordi

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