EJP-RD is a multifaceted program aimed at supporting Rare Disease research in every possible way. This includes funding of primary research, networking and training capacities as well as the development and application of tools and methodologies facilitating the generation, analysis, and dissemination of data all the way from genetic/translational research to clinical trials.

To better address the multidisciplinary and fully available online streamlined academic course on RD research and avoid any duplication, the project has launched a single comprehensive online survey to  explore the needs of a huge group of learners (academic or medical students, young researchers, patients’ organisations, …) and list all existing online training initiatives or projects already developed.

The completion of the survey won’t take more than 5 to 10 minutes.


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