EU Artificial Intelligence act

EU Artificial Intelligence act

On 13 March the European Parliament adopted the world’s first binding law on artificial intelligence (AI). This legislation sets out clear guidelines for the use of AI technologies, aiming to ensure their responsible and ethical deployment. More specifically, the law places restrictions on certain AI applications, such as facial recognition, and prohibits the practice of social scoring, which evaluates individuals based on their behaviour. Moreover, the law...
European Parliament adopts its position on EU pharmaceutical reform

European Parliament adopts its position on EU pharmaceutical reform

On 10 April 2024 , the European Parliament has adopted its position on the EU pharmaceutical reform. The new pieces of EU law come from the "pharmaceutical package" proposed by the European Commission in April 2023 to amend EU pharmaceutical laws. This package aimed to enhance availability, accessibility, and affordability of human medicines, while also fostering the competitiveness of the EU pharmaceutical sector with higher environmental standards. Following...
INTERNATIONAL THALASSAEMIA DAY – GIANNI BENZI FOUNDATION FOR RESEARCH AND IMPROVING PATIENTS’ LIVES

INTERNATIONAL THALASSAEMIA DAY – GIANNI BENZI FOUNDATION FOR RESEARCH AND IMPROVING PATIENTS’ LIVES

On the occasion of International Thalassaemia Day, celebrated every year on May 8th, Fondazione Gianni Benzi reaffirms its commitment to the fight against this genetic blood disease. Thalassaemia represents a major public health challenge, affecting thousands of people worldwide every year. Through research and support for international projects such as Helios, FGB is committed to improving the lives of thalassaemia patients and promoting greater awareness of the...
WHO Issues New Guidance on Ethical Use of Large Multi-modal Models (LMMs) in Healthcare

WHO Issues New Guidance on Ethical Use of Large Multi-modal Models (LMMs) in Healthcare

On 18 January, the World Health Organization (WHO) has released a new guidance document aimed at governing the ethical utilisation of Large Multi-modal Models (LMMs) in healthcare. Unlike conventional AI models, LMMs can process various forms of data inputs and generate novel contents spanning text, images, or video independently by the original data type. These models hold huge promise for applications across healthcare, scientific research, public health, and...
New article published on data sharing for paediatric clinical research

New article published on data sharing for paediatric clinical research

On 20 April, the new article “Mapping of Data-Sharing Repositories for Paediatric Clinical Research-A Rapid Review” was published in Data, a peer reviewed MDPI’s open access journal. The paper discusses the re-use of individual paediatric patient data from clinical trials, which is essential to overcome specific ethical, regulatory, methodological and economic issues that hinder the progress of paediatric research. The investigation looked at existing data-sharing...
Health Data Ethics & Regulatory Frameworks in Rare Disease Research: a free online course starting from May 6th

Health Data Ethics & Regulatory Frameworks in Rare Disease Research: a free online course starting from May 6th

A new Massive Open Online Course (MOOC) on Health Data Ethics & Regulatory Frameworks in Rare Disease Research has been launched today! Developed as part of the European Joint Programme on Rare Diseases, in collaboration with the Rare Diseases Foundation, this course will allow you to meet clinicians, researchers, patient advocacy groups, as well as people working on European infrastructures and regulators. You will be guided by several experts, including our...

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