FONDAZIONE GIANNI BENZI TO PARTICIPATE IN WORLD ORPHAN DRUG CONGRESS 2024

FONDAZIONE GIANNI BENZI TO PARTICIPATE IN WORLD ORPHAN DRUG CONGRESS 2024

We are delighted to announce that Fondazione Gianni Benzi will participate in the World Orphan Drug Congress 2024, which will be held in Barcelona from October 22-25. Our Head of Research and Innovation Department, Viviana Giannuzzi, will give a talk on "Ethics and regulatory guidance for not-for-profit research for rare diseases: the experience of a European funded programme" and join a panel discussion on How does Access to healthcare, treatment and diagnosis...
JOIN THE HELIOS WEBINAR SERIES AND ADVANCE YOUR KNOWLEDGE ON HAEMOGLOBINOPATHIES

JOIN THE HELIOS WEBINAR SERIES AND ADVANCE YOUR KNOWLEDGE ON HAEMOGLOBINOPATHIES

Fondazione Gianni Benzi is pleased to invite you to follow the HELIOS webinar series, an initiative for which it provides organisational support as a member of the project's communication and dissemination team. Each month renowned experts will present the latest advances and findings on topics such as diagnosis, treatment, guidelines and economics. The webinars will be held on Microsoft Teams and recordings will be available on the Helios YouTube channel. The...
NEW ARTICLE PUBLISHED ON HEMATO

NEW ARTICLE PUBLISHED ON HEMATO

Fondazione Gianni Benzi is pleased to announce the publication of a new article in the journal Hemato. The article, titled Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study was co-authored by our researchers M. Aminu Idris (temporarily hosted for a staff exchange), Lucia Ruggieri and Fedele (Duccio) Bonifazi. The article describes the design and implementation of an electronic registry for...
A new collaborative national project

A new collaborative national project

A new collaborative national project involving the Foundation has been recently funded and has just started. It is coordinated by Istituto Ortopedico Rizzoli and involves three other partners in Italy, ie. Gianni Benzi Foundation, Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello and Agenzia nazionale per i servizi sanitari regionali (Agenas), with the purpose to create a model for gathering information collected within biobanks, disease registries,...
NEW ARTICLE PUBLISHED ON FRONTIERS IN MEDICINE

NEW ARTICLE PUBLISHED ON FRONTIERS IN MEDICINE

Fondazione Gianni Benzi is pleased to announce the publication of a new article in the Journal Frontiers in Medicine. The manuscript, entitled Repurposing for Paediatric Needs: The Role of Reformulation, comes from the ideas on this topic from our researcher Viviana Giannuzzi and Siri Wang from the Norwegian Medical Products Agency. It argues the role of reformulation for paediatric needs as part of the repurposing concept, by providing existing data and the...

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