The coordinator of our Scientific Committee, Viviana Giannuzzi, will represent the Benzi Foundation at ECRD2018, the 9th European Conference on rare diseases & orphan products that will be held in May 10-12 in Vienna.
“Rare Diseases 360 ° – Collaborative strategies to leave no-one behind “ is the general topic of this edition of the conference. ECRD is one of the biggest multi-stakeholders meeting in Europe for all the scientific community committed in rare diseases: scientific research, development of new treatments, health and social care, public health policies from regional to international level are only some of the themes to be largely discussed in the event.
The Benzi Foundation contribution to the conference is planned on May 12 in the session dedicated to Breakthrough medicines on the horizon: Regulators, HTA experts and patients working together. In particular, Ms Giannuzzi contribution will be focused on abandoned orphan medicine products.
More info on ECRD2018 are available [here]