EuOrphan is a free portal that collects, catalogues and disseminates updated information on medicines for rare diseases designated and/or approved in Europe (EMA) and in the U.S.A (FDA). The project, started in 2005, was financed by the European Commission in … Continued

EuOrphan is a free portal that collects, catalogues and disseminates updated information on medicines for rare diseases designated and/or approved in Europe (EMA) and in the U.S.A (FDA).

The project, started in 2005, was financed by the European Commission in the framework of the project IT- Technology (510.774 eTEN 2003 / C 118 /19) and developed by the Consortium for the Biological and Pharmacological Evaluations (CVBF). The Gianni Benzi Foundation took the responsibility  of EuOrphan at the end of the public funding period and takes care of its management and updating.

The specific objectives of the research project are to allow a factually evaluation of the coverage of the therapeutic needs in the field of rare diseases in the U.S.A. and Europe and an evaluation of the safety and efficacy data existing on these drugs.

To reach this goal, an electronic repository with the possibility to operate queries of the contents has been created. It has been also developed an information service on orphan drugs that allows to operate statistical and scientific evaluations to disseminate to all stakeholders and in particular to patients and their associations.

The information is accessible, thanks to an user friendly interface, to healthcare professionals, researchers, companies, but also to patients affected by a rare disease and to their associations.

More information is available on the website http://www.euorphan.com/

 

To the top
« Back