Il bambino emofilico III…Generazione futuro

On May 5th the President of the Gianni Benzi Foundation, Prof. Adriana Ceci, will be the moderator of the first session of the event “Il bambino emofilico III…Generazione futuro”, organized in Bari at Villa Romanazzi Carducci. The session will be … Continued

PedCRIN Annual meeting (April 23-24, 2018)

The 2018 annual meeting of PedCRIN (Paediatric Clinical Research Infrastructure Network) will be held on April 23rd and 24th in Bergen (Norway), at Scandic Ørnen Hotel. The H2020 project brings together the European Clinical Research Infrastructure Network (ECRIN) and the … Continued

Rare Disease EJP Cofund: last days for submission

European Joint Programme Cofund under Horizon 2020 is a co-fund action designed to support coordinated national research and innovation programmes. It includes a specific call on rare diseases called EJP Cofund for Rare Diseases which would create a research and innovation … Continued

EPTRI conference in Bari, April 10, 2018

On April 10, 2018 the University of Bari will host the EPTRI meeting “A new research infrastructure for the development of new paediatric drugs”. The representatives of the Italian institutions promoting EPTRI and the project partners will participate in this … Continued

The Benzi Foundation is now part of Ricerc@

A new collaboration enriches the partnership of the Gianni Benzi Foundation. After the recent adhesion to Enerca, the European network for rare and congenital anemia, the Foundation has become part of Ricerc@, the Italian Network of Ethics Committees, Researchers and … Continued

The Gianni Benzi Foundation at ECRD2018 in Vienna

The coordinator of our Scientific Committee, Viviana Giannuzzi, will represent the Benzi Foundation at ECRD2018, the 9th European Conference on rare diseases & orphan products that will be held in May 10-12 in Vienna. “Rare Diseases 360 ° – Collaborative … Continued

Misunderstanding about orphan medicines: a new document from EMA

EMA – European Medicines Agency has recently published a question-and-answer document useful to erase doubts related to the meaning of orphan designation and other aspects related to orphan medicines. The EU legislation foresees giving orphan designation for substances that could … Continued

We’re hiring!

The Gianni Benzi Pharmacological Research Foundation is searching for new people to be included in its staff. The activities in which the new professionals will be involved deal with evaluation of the scientific research performances, registries, observational studies and secondary … Continued

SMART Winter School in Warsaw (March 12-16, 2018)

Warsaw (Poland) will host the winter school of SMART Project – Small Medicines Advanced Research Training, the EU project financed by the H2020 programme aimed at enhancing knowledge and exchange expertise on pediatric studies, including ethics, methodology and innovative studies. … Continued

The Benzi Foundation joins Enerca network

The Gianni Benzi Pharmacological Research Foundation is happy to announce its involvement in ENERCA, the European Network for Rare and Congenital Aenemias funded by the EU Commission aimed at offering an improved public health service to professional medical practitioners and … Continued

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